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Northwell Health Data Policies
Northwell Health data policies:
- #GR052 - Maintenance, storage, and archiving of human subject research data, and policy
- #GR021 - Research data ownership
Policies can be found on the Northwell Intranet.
The DMPTool is a free, open-source, online application that helps researchers create data management plans.
What is a Data Management Plan and a Data Sharing Plan?
A data management plan (DMP) is a formal document outlining how you will handle your data both during your research and after the project is complete.
A data sharing plan (DSP) is a document that describes how you plan to disseminate your data at the conclusion of a research project.
Image Source: Jørgen Stamp [CC BY 2.5 dk (https://creativecommons.org/licenses/by/2.5/dk/deed.en)]
DMP and DSP Elements
Recommended Elements of a Data Management Plan (as noted by the ICPSR):
- Data Description: nature, scope, and scale of generated/collected data
- Access & Sharing: how you intend to make your data available to others
- Metadata: descriptive standards about your data
- Intellectual Property Rights: data ownership
- Ethics & Privacy: informed consent and confidentiality issues
- Format: anticipated submission, distribution, and preservation formats
- Archiving & Preservation: how will you ensure this for the long term
- Storage & Backup: how and where will copies be stored
- Security: how will security be ensured
- Responsibility: who is the data steward
- Existing Data: is similar data available elsewhere
- Selection & Retention Periods: which data is retained and for how long
- Audience: who is likely to see and use this data
- Data Organization: version control and naming conventions
- Quality Assurance: are there standards to be met
- Budget: how will costs for archiving be paid
- Legal Requirements: are there any related to archiving and sharing
Source: Data Management Plan LibGuide, University of Pittsburgh, Health Sciences Library System
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